BBC

There is prenatal screening available for EB. Seems needlessly cruel to force a child to endure this misery.

Epidermalysis bulosa, in case anyone is unfamiliar with it.

I didn't need to read the article, I had a family member with it. It's fucking brutal.

Edit: read it anyway; it's the exact version of the disorder, and my brother died of it at 18 months. That this kid is in that good of shape is a minor miracle, even with his parents doing what needs doing. It only takes the wrong injury at the wrong time, and things cascade.

There is currently no cure for the condition or any effective treatments to prevent the skin problems caused by it

He has to be in bandages and pain killers for the rest of his life. Wtf could he have done in his past life to deserve this. What a travesty that a human could be born to only exist in such pain and suffering.