▲ 1226 ▼ Also very fitting for ADHD (europe.pub) submitted 3 days ago by ickplant@lemmy.world to c/adhd@lemmy.dbzer0.com 123 comments fedilink hide all child comments
[–] Chrobin@discuss.tchncs.de 3 points 3 days ago (6 children) You're not perhaps talking about keratoconus? permalink fedilink source parent hideshow 6 child comments replies: [–] Witchfire@lemmy.world 4 points 3 days ago* (3 children) Lol indeed, I'm surprised someone else knows about it. It's a terrible fucking disability but there's like no research into it and insurance thinks they know better than ophtomologists permalink fedilink source parent hideshow 3 child comments replies: [–] Chrobin@discuss.tchncs.de 2 points 3 days ago (2 children) My brother has it. I'm German, and he got an experimental treatment called crosslinking some years ago. They stabilize the cornea using a laser, and since then, he doesn't need contact lenses anymore, but glasses suffice. Nowadays, it's apparently proven enough that even the public health insurance pays for it. Now, by the price of the contact lenses you mentioned, I presume you're American, and it might be incredibly expensive, but you could still do a bit of research about it. permalink fedilink source parent hideshow 2 child comments replies: [–] Witchfire@lemmy.world 2 points 3 days ago* (1 child) I had cxl a few years back, his case sounds a lot more manageable. Cxl doesn't typically improve vision, it just prevents it from getting worse. I'm in Canada, but it was also $$$ when I was in the US. For some fucking reason it's specifically excluded from the assistive devices coverage here. My ophto has been fighting them for ages permalink fedilink source parent hideshow 1 child comment replies: [–] Chrobin@discuss.tchncs.de 2 points 3 days ago CXL stands for cornea cross-linking, so you have done it already. Then nevermind what I said. Good luck with your struggles in the future! permalink fedilink source parent [–] prole@lemmy.blahaj.zone 1 point 2 days ago* (1 child) Is that the one where, if you don't wear contact lenses, your eyeballs might literally explode? permalink fedilink source parent hideshow 1 child comment replies: [–] Chrobin@discuss.tchncs.de 1 point 2 days ago Nope, your cornea might fall out. At least I haven't heard of exploding eyeballs permalink fedilink source parent
[–] Witchfire@lemmy.world 4 points 3 days ago* (3 children) Lol indeed, I'm surprised someone else knows about it. It's a terrible fucking disability but there's like no research into it and insurance thinks they know better than ophtomologists permalink fedilink source parent hideshow 3 child comments replies: [–] Chrobin@discuss.tchncs.de 2 points 3 days ago (2 children) My brother has it. I'm German, and he got an experimental treatment called crosslinking some years ago. They stabilize the cornea using a laser, and since then, he doesn't need contact lenses anymore, but glasses suffice. Nowadays, it's apparently proven enough that even the public health insurance pays for it. Now, by the price of the contact lenses you mentioned, I presume you're American, and it might be incredibly expensive, but you could still do a bit of research about it. permalink fedilink source parent hideshow 2 child comments replies: [–] Witchfire@lemmy.world 2 points 3 days ago* (1 child) I had cxl a few years back, his case sounds a lot more manageable. Cxl doesn't typically improve vision, it just prevents it from getting worse. I'm in Canada, but it was also $$$ when I was in the US. For some fucking reason it's specifically excluded from the assistive devices coverage here. My ophto has been fighting them for ages permalink fedilink source parent hideshow 1 child comment replies: [–] Chrobin@discuss.tchncs.de 2 points 3 days ago CXL stands for cornea cross-linking, so you have done it already. Then nevermind what I said. Good luck with your struggles in the future! permalink fedilink source parent
[–] Chrobin@discuss.tchncs.de 2 points 3 days ago (2 children) My brother has it. I'm German, and he got an experimental treatment called crosslinking some years ago. They stabilize the cornea using a laser, and since then, he doesn't need contact lenses anymore, but glasses suffice. Nowadays, it's apparently proven enough that even the public health insurance pays for it. Now, by the price of the contact lenses you mentioned, I presume you're American, and it might be incredibly expensive, but you could still do a bit of research about it. permalink fedilink source parent hideshow 2 child comments replies: [–] Witchfire@lemmy.world 2 points 3 days ago* (1 child) I had cxl a few years back, his case sounds a lot more manageable. Cxl doesn't typically improve vision, it just prevents it from getting worse. I'm in Canada, but it was also $$$ when I was in the US. For some fucking reason it's specifically excluded from the assistive devices coverage here. My ophto has been fighting them for ages permalink fedilink source parent hideshow 1 child comment replies: [–] Chrobin@discuss.tchncs.de 2 points 3 days ago CXL stands for cornea cross-linking, so you have done it already. Then nevermind what I said. Good luck with your struggles in the future! permalink fedilink source parent
[–] Witchfire@lemmy.world 2 points 3 days ago* (1 child) I had cxl a few years back, his case sounds a lot more manageable. Cxl doesn't typically improve vision, it just prevents it from getting worse. I'm in Canada, but it was also $$$ when I was in the US. For some fucking reason it's specifically excluded from the assistive devices coverage here. My ophto has been fighting them for ages permalink fedilink source parent hideshow 1 child comment replies: [–] Chrobin@discuss.tchncs.de 2 points 3 days ago CXL stands for cornea cross-linking, so you have done it already. Then nevermind what I said. Good luck with your struggles in the future! permalink fedilink source parent
[–] Chrobin@discuss.tchncs.de 2 points 3 days ago CXL stands for cornea cross-linking, so you have done it already. Then nevermind what I said. Good luck with your struggles in the future! permalink fedilink source parent
[–] prole@lemmy.blahaj.zone 1 point 2 days ago* (1 child) Is that the one where, if you don't wear contact lenses, your eyeballs might literally explode? permalink fedilink source parent hideshow 1 child comment replies: [–] Chrobin@discuss.tchncs.de 1 point 2 days ago Nope, your cornea might fall out. At least I haven't heard of exploding eyeballs permalink fedilink source parent
[–] Chrobin@discuss.tchncs.de 1 point 2 days ago Nope, your cornea might fall out. At least I haven't heard of exploding eyeballs permalink fedilink source parent