Yes! Lots of folks with chronic illness find themselves in a limbo where they can't get decent treatment or often precise diagnosis. Crowdsourcing relief has mixed results, but in such circumstances reports of rigorous trial and error with various approaches is sometimes helpful in the absence of the sort of care a lot of Americans now can't even hope for. I know this because I've been there. CIDP here since 2010.
SOB_Van_Owen
joined 2 years ago
I got really sick and debilitated. Got a grim prognosis that I'd just get worse. Got me to really take my health seriously and do all I personally could through a lot of trial and error to see what might make for a better quality of life. Lost massive weight, kept it off long-term, defied all expectations for over 2 decades, did some extraordinary stuff I'd probably not have attempted if not faced with the end of my life as I've known it.
Are you me?
There's that possibly apocryphal story in The Fly reboot with Jeff Goldblum about how Einstein had like seven identical sets of clothes so he didn't have to waste effort on deciding what to wear.
Chronic Inflammatory Demyelinating Polyneuropathy.
Agreed.